Assisting an angel's family

$30,936 of $30,000 raised

raised by 184 people in 3 years

Verified campaign
Campaigns bearing the verified badge have submitted documents testifying legitimacy of their cause. The Chesed Fund has vetted these documents as authentic.

When I met this amazing family, they had two beautiful girls, and the mother was pregnant with their third child. They made aliyah from North Carolina to Be'er Sheva, and I met them soon thereafter. Devorah, the mother of the family, and I hit it off right away. I fell in love with her two beautiful girls, and helped Devorah prepare for her upcoming birth, being that I am a doula.

Eventually they moved away from Be'er Sheva for new horizons, and I missed them. Of course we kept in touch.

Over the next few years, along with having more children, Devorah and her husband Yochanan were deep in hospital visits and tests for their second child, Ma'ayan, who had started to have seizures. I remembered Ma'ayan as a gorgeous little two year old, perfectly healthy. But at around age three, a rapid deterioration began, that was out of the grasp of the medical community. Nobody had any idea what was happening to this formerly healthy child. Seizures, and eventual regression in all areas of independence... walking, talking, seeing, swallowing, toileting. It was very, very scary, and none of the medications the doctors tried seemed to work. Nobody could figure out what was rapidly happening to this once perfectly healthy child.

Eventually, through a very brilliant neurologist and rigorous genetic testing, an answer was found. It's called Batten disease (type CLN2). It is a recessive genetic disorder. It is also known to be fatal; May Hashem continue to grant her breath and life!

The family decided to keep Ma'ayan home, in a home-hospitalization set-up.  She was no longer physically safe being in a school setting. They wanted her to remain with her other four siblings, and always be part of the family, as opposed to institutionalizing her. Ma'ayan needs round-the-clock care with her feedings (through a tube in her abdomen), medications, and constant suctioning of the phlegm in her lungs which she cannot swallow when she coughs (and can aspirate, chas v'shalom, if it's not suctioned immediately). This is an aspect of Batten disease, a constant state of severe lung disease. Together with the severe epilepsy she still deals with daily, the family has struggled day and night just to keep Ma'ayan safe.

They have had wonderful household help, and some medical helpers keeping watch on Ma'ayan for time periods, but nothing consistent enough. The other four children need everything that healthy kids need, also. Devorah and Yochanan don't sleep much. Someone always has to be awake with Ma'ayan 24/7.

They have finally been granted the assistance of having a foreign worker live with them to assist with Ma'ayan. The worker is expected at the end of September. The expense however is tremendous. Neither parent is able to work and bring in an income because of Ma'ayan's round-the-clock care needs. The family is living on the generosity of the State of Israel's assistance, but it's not nearly enough.

Contributing to this family's needs, specifically Ma'ayan's needs, is an act of such tremendous merit because Ma'ayan is such a tremendously righteous soul. Her work in this world is deep and intensive, and it's all behind the scenes. The depth of emunah in Devorah and Yochanan is so incredibly rich, their understanding of who Ma'ayan is in our world and what her mission is, literally is stunning.

Your contribution to this tremendous, yet humble child and family will bring us closer to Mashiach. We want Ma'ayan to usher in Mashiach personally. And we believe she will. With the help from all Am Yisrael.

The goal of this Chesed fund is for a year of payments to the foreign worker. If you are able to set up a consistent monthly payment, that would be tremendously helpful. The goal is large, but it matches the need. When considering where to contribute your ma'aser, please turn to helping Ma'ayan and her family pay for keeping Ma'ayan safe and happy. Thank you with all my heart.

;
$30,936 of $30,000 raised

raised by 184 people in 3 years

Created by

Sarah Klein
August 2018

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Donations

Grace Liebermann donated

2 weeks ago $613.00
In honor of Refuah sheleima Mayaan Bas Devorah Hadassah

Chani Mizrahi donated

1 month ago $500.00

Grace Liebermann donated

1 month ago $700.00
In honor of Refuah sheleima Mayaan Bas Devorah Hadassah

Chani Mizrahi donated

1 month ago $500.00

Jeremiah J Lieberman donated

2 months ago $35.00

Grace Liebermann donated

3 months ago $445.00
In honor of Refuah sheleima Mayaan Bas Devorah Hadassah

Chani Mizrahi donated

3 months ago $500.00
In memory of Eliyahu Pesach Ben Sara

Chani Mizrahi donated

4 months ago $250.00

Chani Mizrahi donated

4 months ago $500.00

Chani Mizrahi donated

4 months ago $500.00

Eve Sternheim donated

5 months ago $400.00

Chani Mizrahi donated

5 months ago $500.00

Grace Liebermann donated

6 months ago $144.00
In honor of Refuah sheleima Mayaan Bas Devorah Hadassah

Grace Liebermann donated

6 months ago $460.00
In honor of Refuah sheleima Mayaan Bas Devorah Hadassah

Grace Liebermann donated

7 months ago $430.00
In honor of Refuah sheleima Mayaan Bas Devorah Hadassah

Chani Mizrahi donated

8 months ago $500.00

Chani Mizrahi donated

9 months ago $500.00

Grace Liebermann donated

9 months ago $500.00
In honor of Refuah sheleima Mayaan Bas Devorah Hadassah love, Baila

Anonymous donated

9 months ago ₪500.00

Chani Mizrahi donated

10 months ago $500.00

Anonymous donated

10 months ago $195.00

Anonymous donated

10 months ago $125.00

Anonymous donated

10 months ago $340.00

Chani Mizrahi donated

11 months ago $500.00

Nissan donated

1 year ago $10.00

Keith Rosenblum donated

1 year ago $5.00

A B donated

1 year ago $18.00

Grace Liebermann donated

1 year ago $500.00
In honor of Refuah sheleima Mayaan Bas Devorah Hadassah

Chana Mizrahi donated

1 year ago $500.00

Chani Mizrahi donated

1 year ago $500.00
In memory of Eliyahu Pessch Ben Shmuel zev

Chani Mizrahi donated

1 year ago $500.00

Channah Liebermann donated

1 year ago $126.00
In honor of Bas Mitzvah for Maayan Bas Devorah Hadassah

Chani Mizrahi donated

1 year ago $500.00
In memory of Eliyahu pesach Ben shaindel Faiga

Chani Mizrahi donated

1 year ago $500.00
In honor of Don Ben Golda

Chani Mizrahi donated

1 year ago $500.00
In honor of Don Ben Golda should have a Refuah

Rochel P Weiman donated

1 year ago $68.00
In honor of the refua sheleima of all cholim

Chani Mizrahi donated

1 year ago $500.00
In memory of Eliyahu pesach

Chani Mizrahi donated

1 year ago $500.00
In memory of Eliyahu pesach

M Riaboy donated

1 year ago $92.00
In honor of Yehuda ben Perl

Lipi Sternheim donated

2 years ago $200.00

Chani Mizrahi donated

2 years ago $500.00
In memory of Eliyahu pesach Ben Shaina Faige

Grace Liebermann donated

2 years ago $144.00
In honor of Refuah sheleima for Maayan Bas Devorah Hadassah

Sarah Klein donated

2 years ago $36.00
In memory of My loving parents, Philip and Theda Kashin

Chani Mizrahi donated

2 years ago $500.00
In memory of Eliyahu pesach Ben Chaya

Leah Rivkin donated

2 years ago $18.00

Chava Sternheim donated

2 years ago $170.00
In honor of Maayan

Chava donated

2 years ago $100.00
In honor of Maayan

Sarah Klein donated

2 years ago $36.00
In memory of My loving parents, Philip and Theda Kashin

Sara Ovitsh donated

2 years ago $118.00
In honor of Maayan bat Devorah Haddassa

Anonymous donated

2 years ago $5.00
In honor of Avraham aharon ben Rochel Leah

Ziv Namer donated

2 years ago $100.00
In honor of Am Israel

Leah Rivkin donated

2 years ago $18.00

Anonymous donated

2 years ago $370.00
In honor of Maayan and family

Anonymous donated

2 years ago $500.00

Sarah Klein donated

2 years ago $36.00
In memory of My loving parents, Philip and Theda Kashin

Sara Ovitsh donated

2 years ago $118.00
In honor of Maayan bat Devorah Haddassa

Leah Rivkin donated

2 years ago $18.00

Chani Mizrahi donated

2 years ago $500.00
In memory of Eliyahu pesach Ben Shmuel zev

Sarah Klein donated

2 years ago $36.00
In memory of My loving parents, Philip and Theda Kashin

Sara Ovitsh donated

2 years ago $118.00
In honor of Maayan bat Devorah Haddassa

Anonymous donated

2 years ago $18.00

Anonymous donated

2 years ago ₪72.00

Leah Rivkin donated

2 years ago $18.00

Chani Mizrahi donated

2 years ago $500.00
In memory of Eliyahu pesach Ben Shmuel Zev

Sarah Klein donated

2 years ago $36.00
In memory of My loving parents, Philip and Theda Kashin

Sara Ovitsh donated

2 years ago $118.00
In honor of Maayan bat Devorah Haddassa

Anonymous donated

2 years ago $500.00

Anonymous donated

2 years ago ₪72.00

Anonymous donated

2 years ago $52.00

Grace Liebermann donated

2 years ago $180.00
In honor of Refuah shlaima entire family!

Leah Rivkin donated

2 years ago $18.00

Jennifer And Jeffrey Schuller donated

2 years ago $54.00
In honor of Shabbos HaGadol

Chana Crystal donated

2 years ago $18.00
In honor of Healing and protection for Maayan \

Anonymous donated

2 years ago $18.00
In honor of Sarah has Leah Zechariah

Chani Mizrahi donated

2 years ago $500.00
In memory of Eliyahu pesach Ben Shmuel zev

Laurie Tobias-Cohen donated

2 years ago $36.00

Anonymous donated

2 years ago $36.00
In honor of Chaim ben Sarah

Rebecca Lewin donated

2 years ago $18.00

Nicole Schoenberg donated

2 years ago $18.00
In honor of Shaindel

Sarah Klein donated

2 years ago $36.00
In memory of My loving parents, Philip and Theda Kashin

Sara Ovitsh donated

2 years ago $118.00
In honor of Maayan bat Devorah Haddassa

Liba Markson donated

2 years ago $180.00
In memory of Yerachmiel Berel ben Zalman

Anonymous donated

2 years ago $18.00
In honor of Her parents

Grace Liebermann donated

2 years ago $144.00
In honor of Refuah shlaima for Mayan Bas Devorah Hadassah

Chava Sternheim donated

2 years ago $200.00
In honor of Maayan

Chana Rus Cohen donated

2 years ago $50.00

Michael Klein donated

2 years ago $72.00

Chani Mizrahi donated

2 years ago $200.00

Anonymous donated

2 years ago ₪72.00

Anonymous donated

2 years ago $18.00

Leah Rivkin donated

2 years ago $18.00

Anonymous donated

2 years ago $36.00
In memory of Shlomo Zalman ben Mordechai Yisrael Tzvi

Anonymous donated

2 years ago $18.00

Anonymous donated

2 years ago $52.00

David Ismaili donated

2 years ago $50.00

Anonymous donated

2 years ago $18.00

Julie Meyerowitz donated

2 years ago $18.00

Grace Liebermann donated

2 years ago $72.00
In honor of Refuah shlaima for Mayan Bas Devorah Hadassah

Chani Mizrahi donated

2 years ago $500.00
In memory of Eliyahu pesach Ben Shmuel zev

Sarah Klein donated

2 years ago $36.00
In memory of My loving parents, Philip and Theda Kashin
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