Assisting an angel's family

$15,471 of $30,000 raised

raised by 141 people in 11 months

Verified campaign
Campaigns bearing the verified badge have submitted documents testifying legitimacy of their cause. The Chesed Fund has vetted these documents as authentic.

When I met this amazing family, they had two beautiful girls, and the mother was pregnant with their third child. They made aliyah from North Carolina to Be'er Sheva, and I met them soon thereafter. Devorah, the mother of the family, and I hit it off right away. I fell in love with her two beautiful girls, and helped Devorah prepare for her upcoming birth, being that I am a doula.

Eventually they moved away from Be'er Sheva for new horizons, and I missed them. Of course we kept in touch.

Over the next few years, along with having more children, Devorah and her husband Yochanan were deep in hospital visits and tests for their second child, Ma'ayan, who had started to have seizures. I remembered Ma'ayan as a gorgeous little two year old, perfectly healthy. But at around age three, a rapid deterioration began, that was out of the grasp of the medical community. Nobody had any idea what was happening to this formerly healthy child. Seizures, and eventual regression in all areas of independence... walking, talking, seeing, swallowing, toileting. It was very, very scary, and none of the medications the doctors tried seemed to work. Nobody could figure out what was rapidly happening to this once perfectly healthy child.

Eventually, through a very brilliant neurologist and rigorous genetic testing, an answer was found. It's called Batten disease (type CLN2). It is a recessive genetic disorder. It is also known to be fatal; May Hashem continue to grant her breath and life!

The family decided to keep Ma'ayan home, in a home-hospitalization set-up.  She was no longer physically safe being in a school setting. They wanted her to remain with her other four siblings, and always be part of the family, as opposed to institutionalizing her. Ma'ayan needs round-the-clock care with her feedings (through a tube in her abdomen), medications, and constant suctioning of the phlegm in her lungs which she cannot swallow when she coughs (and can aspirate, chas v'shalom, if it's not suctioned immediately). This is an aspect of Batten disease, a constant state of severe lung disease. Together with the severe epilepsy she still deals with daily, the family has struggled day and night just to keep Ma'ayan safe.

They have had wonderful household help, and some medical helpers keeping watch on Ma'ayan for time periods, but nothing consistent enough. The other four children need everything that healthy kids need, also. Devorah and Yochanan don't sleep much. Someone always has to be awake with Ma'ayan 24/7.

They have finally been granted the assistance of having a foreign worker live with them to assist with Ma'ayan. The worker is expected at the end of September. The expense however is tremendous. Neither parent is able to work and bring in an income because of Ma'ayan's round-the-clock care needs. The family is living on the generosity of the State of Israel's assistance, but it's not nearly enough.

Contributing to this family's needs, specifically Ma'ayan's needs, is an act of such tremendous merit because Ma'ayan is such a tremendously righteous soul. Her work in this world is deep and intensive, and it's all behind the scenes. The depth of emunah in Devorah and Yochanan is so incredibly rich, their understanding of who Ma'ayan is in our world and what her mission is, literally is stunning.

Your contribution to this tremendous, yet humble child and family will bring us closer to Mashiach. We want Ma'ayan to usher in Mashiach personally. And we believe she will. With the help from all Am Yisrael.

The goal of this Chesed fund is for a year of payments to the foreign worker. If you are able to set up a consistent monthly payment, that would be tremendously helpful. The goal is large, but it matches the need. When considering where to contribute your ma'aser, please turn to helping Ma'ayan and her family pay for keeping Ma'ayan safe and happy. Thank you with all my heart.

;
$15,471 of $30,000 raised

raised by 141 people in 11 months

Created by

Sarah Klein
August 2018

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Donations

Chani Mizrahi donated

4 days ago $500.00
In memory of Eliyahu pesach Ben Chaya

Leah Rivkin donated

1 week ago $18.00

Chava Sternheim donated

3 weeks ago $170.00
In honor of Maayan

Chava donated

3 weeks ago $100.00
In honor of Maayan

Sarah Klein donated

3 weeks ago $36.00
In memory of My loving parents, Philip and Theda Kashin

Sara Ovitsh donated

3 weeks ago $118.00
In honor of Maayan bat Devorah Haddassa

Anonymous donated

4 weeks ago $5.00
In honor of Avraham aharon ben Rochel Leah

Ziv Namer donated

4 weeks ago $100.00
In honor of Am Israel

Leah Rivkin donated

1 month ago $18.00

Anonymous donated

1 month ago $370.00
In honor of Maayan and family

Anonymous donated

1 month ago $500.00

Sarah Klein donated

1 month ago $36.00
In memory of My loving parents, Philip and Theda Kashin

Sara Ovitsh donated

1 month ago $118.00
In honor of Maayan bat Devorah Haddassa

Leah Rivkin donated

2 months ago $18.00

Chani Mizrahi donated

2 months ago $500.00
In memory of Eliyahu pesach Ben Shmuel zev

Sarah Klein donated

2 months ago $36.00
In memory of My loving parents, Philip and Theda Kashin

Sara Ovitsh donated

2 months ago $118.00
In honor of Maayan bat Devorah Haddassa

Anonymous donated

3 months ago $18.00

Anonymous donated

3 months ago ₪72.00

Leah Rivkin donated

3 months ago $18.00

Chani Mizrahi donated

3 months ago $500.00
In memory of Eliyahu pesach Ben Shmuel Zev

Sarah Klein donated

3 months ago $36.00
In memory of My loving parents, Philip and Theda Kashin

Sara Ovitsh donated

3 months ago $118.00
In honor of Maayan bat Devorah Haddassa

Anonymous donated

4 months ago $500.00

Anonymous donated

4 months ago ₪72.00

Anonymous donated

4 months ago $52.00

Grace Liebermann donated

4 months ago $180.00
In honor of Refuah shlaima entire family!

Leah Rivkin donated

4 months ago $18.00

Jennifer And Jeffrey Schuller donated

4 months ago $54.00
In honor of Shabbos HaGadol

Chana Crystal donated

4 months ago $18.00
In honor of Healing and protection for Maayan \

Anonymous donated

4 months ago $18.00
In honor of Sarah has Leah Zechariah

Chani Mizrahi donated

4 months ago $500.00
In memory of Eliyahu pesach Ben Shmuel zev

Laurie Tobias-Cohen donated

4 months ago $36.00

Anonymous donated

4 months ago $36.00
In honor of Chaim ben Sarah

Rebecca Lewin donated

4 months ago $18.00

Nicole Schoenberg donated

4 months ago $18.00
In honor of Shaindel

Sarah Klein donated

4 months ago $36.00
In memory of My loving parents, Philip and Theda Kashin

Sara Ovitsh donated

4 months ago $118.00
In honor of Maayan bat Devorah Haddassa

Liba Markson donated

4 months ago $180.00
In memory of Yerachmiel Berel ben Zalman

Anonymous donated

5 months ago $18.00
In honor of Her parents

Grace Liebermann donated

5 months ago $144.00
In honor of Refuah shlaima for Mayan Bas Devorah Hadassah

Chava Sternheim donated

5 months ago $200.00
In honor of Maayan

Chana Rus Cohen donated

5 months ago $50.00

Michael Klein donated

5 months ago $72.00

Chani Mizrahi donated

5 months ago $200.00

Anonymous donated

5 months ago ₪72.00

Anonymous donated

5 months ago $18.00

Leah Rivkin donated

5 months ago $18.00

Anonymous donated

5 months ago $36.00
In memory of Shlomo Zalman ben Mordechai Yisrael Tzvi

Anonymous donated

5 months ago $18.00

Anonymous donated

5 months ago $52.00

David Ismaili donated

5 months ago $50.00

Anonymous donated

5 months ago $18.00

Julie Meyerowitz donated

5 months ago $18.00

Grace Liebermann donated

5 months ago $72.00
In honor of Refuah shlaima for Mayan Bas Devorah Hadassah

Chani Mizrahi donated

5 months ago $500.00
In memory of Eliyahu pesach Ben Shmuel zev

Sarah Klein donated

5 months ago $36.00
In memory of My loving parents, Philip and Theda Kashin

Sara Ovitsh donated

5 months ago $118.00
In honor of Maayan bat Devorah Haddassa

Channah Bracha Liebermann donated

5 months ago $108.00
In honor of Refuah shlaima for Devorah Hadassah Bas Sarah

Anonymous donated

6 months ago ₪72.00

Leah Rivkin donated

6 months ago $18.00

Rose Say donated

6 months ago $54.00

Chani Mizrahi donated

6 months ago $500.00
In memory of Eliyahu pesach Ben Shmuel zev

Anonymous donated

6 months ago $100.00

Sarah Klein donated

6 months ago $36.00
In memory of My loving parents, Philip and Theda Kashin

Anonymous donated

6 months ago $36.00
In memory of Moshe Zushe ben Yisrael a’h

Sara Ovitsh donated

6 months ago $118.00
In honor of Maayan bat Devorah Haddassa

Anonymous donated

7 months ago $500.00

Anonymous donated

7 months ago ₪72.00

Leah Rivkin donated

7 months ago $18.00

Chani Mizrahi donated

7 months ago $500.00
In memory of Eliyahu pesach Ben Shmuel zev

Grace Liebermann donated

7 months ago $72.00
In honor of Baila Sara bas Channah Bracha

Chani Mizrahi donated

7 months ago $500.00
In memory of Eliyahu pesach ben Shmuel zev

Sarah Klein donated

7 months ago $36.00
In memory of My loving parents, Philip and Theda Kashin

Anonymous donated

7 months ago $36.00
In memory of Moshe Zushe ben Yisrael a’h

Sara Ovitsh donated

7 months ago $118.00
In honor of Maayan bat Devorah Haddassa

Esther Zimmerman donated

7 months ago $101.00
In honor of Ahuva bas rifka

Anonymous donated

7 months ago $36.00

Anonymous donated

8 months ago ₪72.00

Caryn Ashapa donated

8 months ago $18.00

Leah Rivkin donated

8 months ago $18.00

Chani Mizrahi donated

8 months ago $500.00
In memory of Eliyahu pesach Ben Shmuel zev

Sarah Klein donated

8 months ago $36.00
In memory of My loving parents, Philip and Theda Kashin

Anonymous donated

8 months ago $36.00
In memory of Moshe Zushe ben Yisrael a’h

Sara Ovitsh donated

8 months ago $118.00
In honor of Maayan bat Devorah Haddassa

Anonymous donated

9 months ago ₪72.00

Naftali Z Nadel donated

9 months ago $18.00

Leah Rivkin donated

9 months ago $18.00

Chani donated

9 months ago $500.00
In memory of Eliyahu Pesach Ben Shmuel Zev

Sarah Klein donated

9 months ago $36.00
In memory of My loving parents, Philip and Theda Kashin

Anonymous donated

9 months ago $36.00
In memory of Moshe Zushe ben Yisrael a’h

Sara Ovitsh donated

9 months ago $118.00
In honor of Maayan bat Devorah Haddassa

Chani Mizrahi donated

9 months ago $100.00
In memory of Eliyahu pesach Ben Shmuel zev

Chani Mizrahi donated

9 months ago $200.00
In memory of Eliyahu pesach Ben Shmuel Zev

Leah Rivkin donated

10 months ago $18.00

Anonymous donated

10 months ago ₪72.00

Chaya Rivka Fischl donated

10 months ago $180.00
In honor of Chani Mizrahi

Leonard Sternheim donated

10 months ago $150.00
In honor of Maayan bas devorah

Anonymous donated

10 months ago $52.00

Miriam Kaiser donated

10 months ago $25.00
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